Dr. Maria Adelita Reyes-Velarde actively collaborates with the National MS Society as an independent contractor/consultant for Hispanic outreach projects while working on her doctorate degree on Education, specializing on Online Education and Teaching for special populations. She holds a medical degree from Ecuador and a master in Public Health - Administrative Medicine Management from George Washington University, DC.
On 2001 she created the website "Hablemos de Esclerosis Multiple"-Let's talk about MS the first website to provide practical health information in Spanish a way to empower people living with MS. Today, it continues to brings up-to date information on the disease.
When she worked as Director of Multicultural and Clinical Initiatives in the Department of Research and Clinical Programs at the National Multiple Sclerosis Society (USA), she had the opportunity to establish best practices to deliver culturally and linguistically appropriate programs and services to clients with diverse levels of understanding by developing tools that provided a uniform way to convey complex information. She developed and edited multiple means to convey Spanish MS information such as brochures, web casts, and web pages including initiating and rolling out the National MS Society Spanish information web pages and authorship of the first web based MS information kit in Spanish “Tome control de su esclerosis múltiple”, and the Society flagship Spanish MS book for newly diagnosed “Con los pies en la Tierra” now on its third edition. Dr. Reyes-Velarde also had the honor of being a spokesperson for the National MS Society helping to develop and maintain relationships with national and international Hispanic organizations for collaboration in outreach efforts.
On Jan. 2010, looking for an innovative way to improve knowledge on MS, Dr. Reyes- Velarde launched Desde Mi Balcon (from my balcony), a bilingual blog to address in a unique way everyday topics and concerns of the Hispanic person living with MS. (Other publications by Dr.Reyes-Velarde)
For motivational or educational talks about MS to the Latin community you can contact Dr. Reyes-Velarde.
Conferences and training given by Dr. Reyes-Velarde:
- "Finding the inner strength of the familia through communication" (in Spanish),
National MS Society, NYC Chapter, Dia de la famila hispana que vive con EM, 11/2011
- "New Treatment Options - Things to consider" (in Spanish), National MS Society,
Southern California Chapter & Nevada Chapter, 6/2011
- "Living Well with MS", (in Spanish) Renacer Fundación Dominicana contra la EM, Sto
Domingo, República Dominicana, 05/2011
- "Emotions and Intimacy in MS" (in Spanish) National MS Society, NYC Chapter, Day for
Hispanic Families Living with MS, 11/2010
- "Creating a positive impact on MS Care: Understanding the Hispanic Culture", National
MS Society Georgia Chapter, 7/2010
- "Wellness in MS", (in Spanish) National MS Society Southern California Chapter, 5/2010
- "Pain in MS", (in Spanish) National MS Society telephone support group "Cafe con
Leche", 3/2010
- "Managing Pain in MS" (in Spanish) National MS Society, NYC Chapter, Day for Hispanic
Families Living with MS, 11/2009
- “Increasing Diversity in Hiring and Volunteer Engagement”, Field Ops University,
National MS Society cultural competence staff training, 12/2008
- “Understanding the multicultural communities in your area”, National MS Society
national conference, Chicago, 11/2008
- “Importance of belonging to a support group”, (in Spanish) Mexican Federation
National Conference, Guadalajara, Mexico, 10/2008
- “Opening New Horizons – involving multicultural diverse volunteers”, National MS
Society cultural competence staff training, recorded and posted on the Society Learning Management System for on-going staff training, 05/2008
- “Working with Volunteers in Advisory Councils”, National MS Society national
conference, Dallas,11/2007
- “Living with MS” – motivational speech at the Hispanic Family Living with MS Day, New
York City, 09/2007
- “Engaging communities to reach culturally diverse communities”, National MS Society
cultural competence staff training, 08/2007
- “Reaching Hispanics/Latinos with MS”, National MS Society cultural competence staff
training, 08/2006
- MS Life, Best Strategies article on the website and blog, February 17, 2012
- Vivir con EM, El Nuevo Dia newspaper, San Juan, Puerto Rico, 8/2011
- “La EM e invitación a celebrar día mundial EM” (About MS and invitation to program
celebrating World MS Day) live broadcast radio program ‘Con Los 5 Sentidos’, CDN, Sto Domingo, Dominican Republic, 5/2011
- “La EM en la Republica Dominicana e invitación a celebrar día mundial de EM” (About MS
in DR and invitation to program celebrating World MS Day) live broadcast TV program ‘Esto No Tiene Nombre de la Nota Diferente’, Sto Domingo, Dominican Republic, 5/2011
- “ La EM” (About MS in DR and invitation to program celebrating World MS Day) live
broadcast TV program El día de Huchi Lora, Canal 11, Sto Domingo, Dominican Republic, 5/2011
- "Esclerosis múltiple, condición a identificar y tratar" interview newspaper El Diario Libre,
Sto Domingo, Dominican Republic, 05/2011
- "La enfermedad Esclerosis Múltiple se celebra el Día Mundial", video interview, Noticias
SIN, Sto Domingo, Dominican Republic, 05/2011
- “Sobre la EM? (About MS)”, recorded interview to create consciousness on the
Hispanic Community on MS, Telemundo Atlantla TV, 7/2010
- “¿Qué es EM? (What is MS?)”, live interview to create consciousness on the Hispanic
Community on MS and invitation to the Day living with MS, Univision New York TV, 11/2008
- “Esclerosis Múltiple es un tema tabú en los hispanos / Multiple sclerosis is often a
taboo subject among Hispanic families”, bilingual interview published on El Hispanic News, El dia news, Impre.com, y Metro Latino USA , 7/2008
- “Esclerosis Múltiple en los Hispanos”(MS in Hispanic Community), live interview to
create consciousness on the Hispanic Community on MS during MS Awareness week, Univision New York TV, 3/2008
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